He was bourne on Labor Day.
Cute little booger....
I took this just minutes before he stopped breathing in his mother's arms.
He celebrated 2 1/2 hours of normal living before it all went upside down.
Three heart defects, complicated by Downs Syndrome....
20% success rate for each of the three needed surgeries, and subsequent heart transplant, with the healthiest of Downs Syndrome babies--and he's far from one of the healthiest. Yesterday they told us surgery wasn't an option.
There's a second opinion due today from a high caliber children's hospital--but we don't expect the answer to be different. It's a matter of what the parents needed to do to be at peace. Even if the numbers are a bit higher, the doctors aren't convinced he would survive the transfer. Things are just too fragile. Multiple times a minute they're in the room adjusting something or other to sustain life in a very controlled environment.
Attempts to remove him from the machines controlling his breathing weren't successful and didn't lend to the hope of something different for this small fella that's my grandchild.
Today, the parents are allowing friends and family to visit for the first time. It's just been the two grandmothers and two close friends to the parents, to date. It's all they could handle.
Baptised yesterday...tomorrow he'll be removed from the machines and will be held by his mother and father until he finds eternal rest.
No, it's not 'right' or 'fair'.
But G-d chose the two VERY best parents He could find to love this wee fella from the moment of inception to the moment he goes to heaven.
11 comments:
♥
oh Mel,
What a heart-breaker.... and what a sweet wee Spirit he has. He looks like a little Buddha in the photo. I'm sure this is an especially hard time and since I've experienced loss of a child, I also have some sense of the agony felt by his parents. I am sending prayers and gentle thoughts on the wind. xox
If I told you I have tears in my eyes would it be enough to let you know how I feel after reading about your grandson. God take care of the little fellow, and his family too.
My thoughts and prayers are with you and your family Mel at this very sad time.
no words - love and prayers and a long distance hug
... Love .... Hugs ....
You and your family are in my thoughts and prayers Mel during this most difficult time of hello and good-bye. Much love to you and to the little one.
Mel, I am just at a loss for words. My heart is breaking for all. Sending prayers and loving thoughts of comfort.
Bill and Vi
Mel... your newest is so cuddly cute. I know you will treasure this moment you captured forever. Mel... I just want to wrap my arms around you and hold you. Words are inadequate at moments like these. Praying for you and your family... may you know God's comfort in unmerited measure. {{{{{Mel}}}}}}
Sending love and strength to you, and all.
<3
Dear Mel - I've come over via Bill's ... and feel for you all - such a heart-felt post ... I love your last para:
But G-d chose the two VERY best parents He could find to love this wee fella from the moment of inception to the moment he goes to heaven.
Time to think and reflect ... with many thoughts - Hilary
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